Puil's presentation

Puil made a presentation for our FAP support group's yearly meeting. Here are some extracts of it and I only changed the names. As remember, nothing is real.

1) It was a wonderful summer day when the Princess and the Prince first met and fell in love at once. They could not believe how lucky they were and their love grew day after day.

2) One day the Prince said:

“Once upon a  time there was a powerful wizard who casted the most evil spell on the world. Who were cursed died shortly after their children were born and what is even worse they passed on their terrible fate from generation to generation…”

“…  and my father” - the Prince said – “was one of them.”

3) My grandmother died when my father was 20 and he suspected that he might be affected as well. But apart from a single incident he had no signs for a long time. Meanwhile Elsie, I and Valerie were born; all was almost forgotten. Then suddenly after his 40th birthday he had to have his bowel removed. Unfortunately it was too late, and 4 years later he died. Elsie was 13, I 10 and Valerie only 7.

4) The Prince continued “My dear mother knew that her three little children might face the same fate. The Queen invited a prophet and learnt that my younger sister and I are in danger too.“

Every year at my endoscopy just a couple of tiny polyps were found. However when Valerie was screened at 18 for the first time more than 100 polyps were found. So the result was unexpected and quite a big shock to her. They wanted to remove her bowel but Valerie refused. Instead she had a special diet for 40 days (she did not take any solid food) and when the endoscopy was repeated most of the polyps have disappeared. Since then she is fine, so it was suspected that we probably have the attenuated type of FAP. But she needs an awful lot of support every time before the screening and she is so afraid to have a bad result again. That’s why I am really glad to have come and met you and see that there is life after the surgery.

5) “Don’t be afraid” - the Princess embraced him. “I’m with you”.

“I’m not worrying of myself” - the Prince replied. “but my children.”

“There must be a way to save them from the curse” whispered the Princess “and we will find it however long it takes and however far we have to go”.